Posted by: maboulette | January 27, 2012

STUDY OF FREAKISH MYSTERY ILLNESS FINDS NO CAUSE


Skin vesicles created by the penetration of Sc...

By MIKE STOBBE | Associated Press

ATLANTA (AP) — Imagine having the feeling that tiny bugs are crawling on your body,  that you have oozing sores and mysterious fibers sprouting from your skin. Sound like a horror movie? Well, at one point several years ago, government doctors were getting up to 20 calls a day from people saying they had such symptoms.

Many of these people were in California and one of that state’s U.S. senators, Dianne Feinstein, asked for a scientific study. In 2008, federal health officials began to study people saying they were affected by this freakish condition called Morgellons.

The study cost nearly $600,000. Its long-awaited results, released Wednesday, conclude that Morgellons exists only in the patients’ minds.

“We found no infectious cause,” said Mark Eberhard, a Centers for Disease Control and Prevention official who was part of the 15-member study team.

The study appears in PLoS One, one of the Public Library of Science journals.

Sufferers of Morgellons (mor-GELL-uns) describe a variety of symptoms, including fatigue, erupting sores, crawling sensations on their skin and — perhaps worst of all — mysterious red, blue or black fibers that sprout from their skin. Some say they’ve suffered for decades, but the syndrome wasn’t named until 2002, when “Morgellons” was chosen from a 1674 medical paper describing similar symptoms.

Afflicted patients have documented their suffering on websites and many have vainly searched for a doctor who believed them. Some doctors believe the condition is a form of delusional parasitosis, a psychosis in which people believe they are infected with parasites.

Last May, Mayo Clinic researchers published a study of 108 Morgellons patients and found none of them suffered from any unusual physical ailment. The study concluded that the sores on many of them were caused by their own scratching and picking at their skin.

The CDC study was meant to be broader, starting with a large population and then went looking for cases within the group. The intent was to give scientists a better idea of how common Morgellons actually is.

They focused on more than 3 million people who lived in 13 counties in Northern California, a location chosen in part because all had health insurance through Kaiser Permanente of Northern California, which had a research arm that could assist in the project. Also, many of the anecdotal reports of Morgellons came from the area.

Culling through Kaiser patient records from July 2006 through June 2008, the team found — and was able to reach — 115 who had what sounded like Morgellons. Most were middle-aged white women. They were not clustered in any one spot.

That led to the finding that Morgellons occurred in roughly 4 out of every 100,000 Kaiser enrollees. “So it’s rare,” Eberhard said.

Roughly 100 agreed to at least answer survey questions, and about 40 consented to a battery of physical and psychological tests that stretched over several days.

Blood and urine tests and skin biopsies checked for dozens of infectious diseases, including fungus and bacteria that could cause some of the symptoms. The researchers found none that would explain the cases.

There was no sign of an environmental cause, either, although researchers did not go to each person’s house to look around.

They took fibers from 12 people, which were tested at the Armed Forces Institute of Pathology. Nothing unusual there, either. Cotton and nylon, mainly — not some kind of organism wriggling out of a patient’s body.

Skin lesions were common, but researchers concluded most of them were from scratching.

What stood out was how the patients did on the psychological exams. Though normal in most respects, they had more depression than the general public and were more obsessive about physical ailments, the study found.

However, they did not have an unusual history of psychiatric problems, according to their medical records. And the testing gave no clear indication of a delusional disorder.

So what do they have? The researchers don’t know. They don’t even know what to call it, opting for the label “unexplained dermopathy” in their paper.

But clearly, something made them miserable. “The absence of evidence is not evidence of absence,” said Felicia Goldstein, an Emory University neurology professor and study co-author.

She said perhaps the patients could be helped by cognitive behavioral therapy that might help them deal with possible contributing psychological issues.

The study is not expected to be the last word on the subject.

Among those with additional questions is Randy Wymore, an Oklahoma State University pharmacologist who for years was the most reputable scientist to look into it and who has concluded Morgellons is not a psychiatric disorder.

On Wednesday, Wymore said he had not seen the CDC paper and was unable to comment on it. But when the study began, he questioned whether Kaiser patients with Morgellons would participate, especially if they were unhappy with how they were previously handled by their Kaiser doctors.

“There is always the question: How many of the study participants actually have Morgellons Disease?” he said, in an email.

The CDC is not planning additional study, however. The agency’s expertise is in infectious diseases and environmental health problems, and the researchers saw no evidence of that.

“We’re not mental health experts,” one CDC spokeswoman said.

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Responses

  1. […] STUDY OF FREAKISH MYSTERY ILLNESS FINDS NO CAUSE « As … […]

  2. thank you fro covering the untouchable subject of morgellons. it is really a shame what the cdc did however. whole families are suffering this. babies are being born with it. the suffererss pets are getting this. both my sister and i have it. this is much deeper than the some itchy skin or lesions. it is a debilitating condition which for some reason seems to be getting swept under the rug. doctors are not treating the afflicted. meanwhile the people that are not yet sick with this are not being told the truth. until there is sincere research it will be a mystery as to how it is vectored. also for those of you that do not have morgellons you might want to read the disclaimer on the cdc report. it is frightening actually.
    http://morgellonspgpr.wordpress.com/2012/04/27/an-interesting-disclaimer-at-the-end-of-the-morgellons-cdc-study/

    • I am one of the many faces of Morgellons. I live in the deep south, the state of Alabama, USA. And, I have been unable to find any doctor to even ‘look’ at my signs and symptoms, that began approx. 18 months past. I saw a Dermatologist/Pathologist two weeks ago, out of pocket I paid for that ‘screw job’, only to be treated like a ‘uneducated leper fruitcake’. I brought photos, they were lost in the office in less than 30minutes. The DVD I brought with pictures and video of ‘my’ skin was damaged when it was returned to me, I made sure I had another just in case something like that did occur. My pupil in my right eye was dilated, and this is new symptom that occurs with headaches. I ask for an MRI, I’m paying for it, right? He would not, he agreed something is wrong with your brain but still no MRI. He did one lab for tertiary syphilis, I paid for and negative. I have seizures now x2 months, almost everyday, my psychiatrist put me on med for this, but refuses to do MRI, says due to old head injury. The CDC has inevitably hindered us all, no progress and people are dying, literally.
      The World Health Organization doesn’t agree with CDC, determined Morgellons is a new rare *INFECTIOUS* disease. Hummm….”wake up people” just because they say it isn’t so, the CDC, won’t make it go away.
      Dellusions of Parasitosis or DOP, commonly tagged Morgellons, is for me, reality… or ROD…”Reality of Dumbasses”.
      Happy New Year 2014, I’m looking forward and onward and prayin’ for us all.

  3. What lot of folly to say about a natural thing. From aliens to chemicals even one combined to create disease, I read them all. These are all stories for Bedtime. When people are looking for answers and don’t find tell us a lot of fairy tales. Incompetent and greedy we chose to lead us. Now we see the effects of underfunding education worldwide. There is no one to see normal relations between a cause and an undesirable effect? World leaders are impotent in the face of a phenomenon of the body’s natural defenses.
    I found the real cause of suffering skin. Morgellons has no cure. Morgellons is a cure. More specifically it is a normal reaction to some extremely dangerous factors. I have tested and confirmed two-way relationship between cause (harmful factors) and effect (skin damage). Morgellons is a warning. Perhaps the last warning.

    See the evidence of recovery by removing those factors without any medicine without special diet:

    http://iso.ro/Morgellons/MorgellonsPhoto.aspx

    Read on page.
    http://iso.ro/Morgellons/MorgellonsEngleza.aspx
    All is true. Those factors can cause the greatest genocide in human history. Those factors are really very dangerous and unfortunately present in each moment. Can be reduced instead.
    Want to know more?
    This is extremely dangerous information. People very important and very rich will be affected by these revelations. Do not tell too many people! Keep the information to yourself and your loved ones.

    I search for serious peoples to continue the research and / or healing. I want and I can stop this mess with Your help.

    For healing:
    First contact me, Send the pictures with your skin on email: myskin@iso.ro . After that I will answer if I could heal you. Don’t pay before.


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